Guys Hospital – psoriasis adventures

Wednesday, 14 April, 2021

It’s been quite a year for Krish. During his eye ‘adventures,’ which I now realise I haven’t really talked about much, he developed plaque psoriasis.

No one is quite sure what cases psoriasis. Stress is a trigger, but so too is steroid use (from his eye treatment) which also means his vitamin D level was compromised. Darker skinned people naturally have lower vitamin D because of their skin pigmentation. The darker your skin the more protection you have from the sun’s UV radiation, and that protection limits your ability to absorb VitD. Both stress and low VitD contribute to suppressing the immune system. Psoriasis is an immune-driven, hyperactive response.

It started with a small patch and within weeks, it covered his scalp his trunk and legs. Lots of home skin slatherings from several ointments and lotions later, he was referred to Guys Dermatology Centre for some serious treatment. At first he saw a consultant, and the 13th he started in the clinic. I decided to go with him for this appointment. We made plans to go for what looked like a 90-minute session and then do a bit of exploring.

It didn’t quite go that way! More foiled plans…

Guys is about 5 miles away
Guys is about five miles away. We can see the Shard from our window
On the train to Liverpool Street
On the train to Liverpool Street
Distancing at the barriers
Distancing at the barriers
A bit busier than last time at Liverpool Street Station
A bit busier than last time at Liverpool Street Station
More distancing at Liverpool Street Station
More distancing at Liverpool Street Station
There'll be a new Eataly here!
There’ll be a new Eataly here! Outside Liverpool Street Station

Maybe it’s the pandemic and lack of chaos, but I kept noticing things on Bishopsgate that I’ve not seen before. I must have been there hundreds of times, so how could I have overlooked so much?

Fire Brigade Station
Fire Brigade Station – above the Tesco store on Bishopsgate
Great Eastern Railway Hotel
Great Eastern Railway Hotel, now the Andaz

So much to see hear but the appointment time was getting closer, so we got the bus over to London Bridge Station, a stone’s throw from Guy’s Hospital.

Pandemic or not, I’m always excited to see the river. In my travels I’ve realised that I need to live in (or at the edge, at least) of a city but that city must be on a river, by the ocean, or a lake. A coastal city would be ideal for me were I able to afford to live there. Today, circumstances didn’t allow me to gaze at the Thames for too long, but I loved knowing I was there.

Instead, we headed straight for the Dermatology Clinic at Guy’s. First we had to head towards the new London Bridge station entrance, right at the Shard, and down an escalator to St Thomas Street and the beginning of Great Maze Pond – what a great street name!

Bike stand at the station
Bike stand at the station. No rival to Amsterdam bike racks, but this stand would normally be packed with bikes
Looking back at the bus station, London Bridge
Looking back at the London Bridge bus station, where our bus arrived
Ghost town at London Bridge station
It really was a ghost town at the usually all-day busy newly renovated London Bridge station. I need time to explore it all – this is just a small section
Pandemic travel rules
Pandemic travel rules
The Shard
Outside the station, looking up at the Shard – I can’t see the bottom or the very top
Down to St Thomas Street and straight ahead is Great Maze Pond
Down to St Thomas Street and straight ahead is Great Maze Pond
Great Maze Pond plaque
Great Maze Pond plaque

The plaque reads ‘The “Maze” Pond, which used to be situated at the southern end of the Guy’s site, was fed by a tributary of the River Thames, now known as ‘Guy’s Creek’. Archaeological excavation of the site has unearthed an early Romano-British boat and Roman timbers edging the creek.
In the Middle Ages farmers from Kent and Surrey used to drive their cattle up to London for sale at Smithfield Market. The fields around the Maze Pond were a focal point where the cattle were grazed and watered.
“Mr Guy’s Hospital for Incurables” was built on this site in 1725. John Rocque’s 1746 Map of London shows the pond still in existence. The local street-names then included “Maze Pond”, ” Little Maze Pond” and “The Maze pond”, which subsequently became Great Maze Pond – the name it still has today.’

The hospital itself has an interesting history as does the Dermatology Centre. The hospital was founded in 1721 by philanthropist Thomas Guy, who had made a fortune as a printer of Bibles and then speculated his money in the South Sea Bubble. At first the hospital was established to treat “incurables” discharged from St Thomas’ Hospital.

The  dermatology department  is the largest clinical dermatology department in the UK. John Milton founded St John’s Hospital for Diseases of the Skin in 1863. He was a surgeon who suffered from hand eczema so severe it ended his career. His personal experience with skin disease triggered his interest in dermatology.  St John’s Hospital for Diseases of the Skin moved to St Thomas’ Hospital in the mid-1980s. Soon after, it was formally renamed St John’s Institute of Dermatology.

At the Derm Centre
Standing on Great Maze Pond with the Shard straight ahead and the entrance to the hospital on my right
Immediate skyline from Guys - the Shard pointing to the sky
Immediate skyline from Guys – the Shard pointing to the sky

There’s not a lot of fuss at Guy’s Hospital compared to my visit to Barts. There are a few banks of hand cleaners and a table with a few people in attendance. No one checked if I had an appointment and no one offered me a new mask, asked me symptoms questions or took my temperature. This surprised me. We went through this casual ‘barrier’ and on to Bermondsey Wing where the Dermatology Centre is.

Again, there’s a simple table and a guard but she doesn’t ask us anything, so Krish checks in at the desk, and we sit down in the atrium waiting area and start looking for Krish’s name to appear on the board.

The quiet waiting area
The quiet waiting area at the Dermatology Clinic

Inside the atrium of the waiting area, and a view of the Shard summit
Inside the atrium from my seat, there’s a lovely view of the top of the Shard

And wait we did. Eventually a nurse came looking for him – his name had never appeared. Off he went, while I waited. After a bit the messages started to arrive

-I’m sitting waiting now
-Totally covered
-Sticky
-Head to toe
-Wrapped head

I thought about this for a minute then I said

-Take a selfie

It occurred to me that social media phobic Krish may not know how to take a selfie, but he did. I’ll spare his dignity and your eyes by not posting those photos here but his treatment will be head to toe emollient, one hour wait, applied pure coal tar (which he described and sounded like a hot wax treatment complete with popsicle sticks), one hour wait, then a shower, then steroid ointment before leaving. He’ll be going back for this three times a week for three weeks (minimum). So, if you get severe psoriasis, expect some or all of the same.

His appointment is five hours and the plan to walk about afterwards is vanishing. Walking painfully with a crutch means I really won’t attempt it alone, but I’m OK. Instead I go for a very short look outside and to try to find a snack. I didn’t find one out there but I did take a look for as long as my legs would carry me. And there’s a lot including a reference to a buried Roman boat under the Cancer Care Centre, and some fantastic ironwork opposite the main entrance. Otherwise, it’s a bland council estate area with nothing remarkable, at first glance anyway. Continue reading “Guys Hospital – psoriasis adventures”

COVID – Restlessness and Lethargy

Thursday, 8th April, 2021

I think about my blog every day. I think about writing for it every day. A day becomes a week becomes a month. I’m at once restless and lethargic, and how do I come to terms with that?

I’m not exactly sure.

My mother always told me, Janice, you think too much. She was right. What I think most about is other people. Who are they? What are they doing? Why don’t I know them? Where do they live? What do they eat? What are their lives when they are not in front of me, inside my head? Yes, all of that and more.

The short version of the story is I’m not getting out much and I’m not seeing that many people. Lockdowns combined with a deteriorating knee keep me indoors and away from things I normally love to do. I try to think about people who have written whole books while being (what I consider) prisoners of home and even bed. My hat’s off to them. Yes, the stories are still in my head but I lack the motivation. I’ve heard that inspiration is something being taken in, and motivation is about movement – a driving force.  Motivation is more closely connected to external stimuli, while inspiration is based on the internal stimuli. I’d say that right now I do feel inspired, but not really motivated. So if I’m not getting out that much, external stimuli are dampened, and the thoughts stay inside my head. So let’s get them out a bit.

I say I haven’t been out much, but I’m blessed by living in an area that is infinitely walkable (even now, and even though that might be limited) and infinitely fascinating. Those who feel at one with nature have a hard time understanding that. In nature I understand the peace and beauty, but as large as the vista might be, it’s harder for me to examine. Where are the people? Maybe I don’t want to face the person who is there – me. Hmm.

Right now ‘me’ is a person who can barely walk. My knee has given up and more than a few minutes on it becomes unbearably painful. Except I do bear it, and don’t want to. I’m doing my best. If I don’t try, then I’m missing out on so many things. Throughout the pandemic, I’ve managed what I could. Now my radius is shrinking and I’ll still do what I can. So let’s look at what I’ve managed to do and think positive and look ahead.

Not in order but a smattering of life chez moi at the moment.

Poetto
We are still mourning the loss of a favourite haunt, Poetto – a nice pizza and pasta with friendly service. Gone a few months before lockdown. Maybe it was a blessing for them.

Dragon guarding Upper Clapton Road
Krish noticed a dragon standing over a building – now building supplies but we’d love to know what it was before. I’ll keep researching!
Tram Depot
There was apparently a tram depot in Clapton and this is the yard. Nowadays it’s a collection of rental studios for film and photography called Hackney Studios. Notice the ghost sign, centre right.
Tram Store
After the tram depot, we visited Tram Shop. You can normally have a meal here, but right now it’s a general store. We found a few things to buy, none were food.
On the way to The Dusty Knuckle
I wanted to buy something at the Dusty Knuckle in Dalston. By the time I made it there (damn you, bad knee) the shelves were bare. Absolutely everything had sold out. This is the alley leading down to the bakery yard.

Stik in the Curve Garden
I hadn’t been in the Curve Garden for months! It was looking very green and wasn’t too busy. So Melodie and I sat by the Stik wallart and Melodie, who used to be his landlady, sent him texts, unanswered. I’m still a groupie, it seems.
Five King Edwards Road
When Krish had his vaccination, we made time to visit Fremont Street, home of my great grandmother and father, and where my maternal grandmother was born. Along the way we saw Five King Edwards Road, once a women’s fashion factory, now fancy flats.
Some elegant stonework.
We think this grand facade was likely the offices for the factory. Such elegant stonework.
Fremont Street

6 Fremont Street

6 Fremont Street. My maternal great grandparents lived here. It seems strange that I am now only 1km away from an ancestral home. Strange but fitting.
Nan and her mum
My maternal great grandmother, Phoebe, with my maternal grandmother, Charlotte (looking incredibly like my mum)

Tesco

Tesco Morning Lane. In just one year the world has changed. Shopping is a new experience and sometimes it feels like it was always like this, especially when I see people looking like they are used to it.

Knitting
I have always been a bad needleworker, but I enjoy creating things, watching them take shape. I made these ‘postwoman’s gloves’ from a simple pattern and decorated them. I’ve now made a third pair in light orange.
Stik at Homerton
I went for an XRay on my knee and made sure I stayed a while in front of the Stik mural in one of the courtyards. 
Daylight Savings Time
On 28 March the clocks went forward in the UK. The evenings are longer. The trees on Sandringham Avenue will soon be in leaf, and the skies will stay lighter.

Traffic
Low Traffic Neighbourhoods have taken cars away from some smaller streets and forced them to the larger streets, like mine. Every day starting around 3pm the parade of cars begins, ending almost four hours later.

Continue reading “COVID – Restlessness and Lethargy”

Vaccinated!

Monday, 1st February, 2021

Today was historic for me. I had my first Covid vaccination. I’ll confess I hadn’t wanted to be one of the first in line for it. It feels too new and untested, but I also knew deep down that I would probably be just fine with doing it when invited. My invitation came by text on Tuesday, I phoned my doctor’s office on Wednesday morning and they offered me today (Monday) at 12:10pm. I was on!

If you’re still waiting and want to know what it’s like…Pictorial essay follows!

Bocking Street Vaccine Centre
I had the choice of two vaccination centres. I chose Bocking Street, which is at the back of Mare Street Market. The building didn’t inspire much
Queue for vaccines
There was a short queue waiting to get in. We were met at the door and asked the usual health questions and had our temperature taken and hands sanitised. We then went through a second check. I asked if Krish could get a vaccine as my carer and was told to try when I reached the window. They were very nice, but said ‘not today’
Waiting room
Inside the centre, I got a seat among others with plexiglass between each one. I had an entry ticket number that they jokingly referred to as my raffle ticket. Krish was allowed in with me all the way
Vaccination Centre Cleaner
There was one person doing cleaning at the centre. She diligently cleaned every chair, in every area after each person, seldom resting. Hats off to her!
Cleaning
Cleaning
Cleaning
Cleaning
Waiting room, Vaccination Centre
We waited on our chairs, plastic shields between each one

So what was it like, getting the vaccine? I was sent into the main room which had many cubicles. They told me walk straight ahead where I saw a doctor waiting, masked. His badge read ‘Declan’ and he told me his name, which I sadly forget.

Declan explained to me about the vaccine and asked me a few questions. He then asked me if I had any questions of my own. I told him that, despite everything, I always worried somewhat about having an allergic reaction and he reassured me that if I had never had one, it was extremely unlikely. He explained things as if he were doing it for the first time – simply and warmly. I appreciated that. He prepared the syringe and stood beside me and I waited for the ‘sharp, short pain’ he promised. Then he said ‘OK, it’s done.’ I was actually shocked. I hadn’t felt anything at all and thought I hadn’t had it yet. I told him so and he said ‘It’s not about skill. It’s hit and miss if I hit a pain receptor spot.’ I thanked him and headed off for the assessment waiting room, where I would wait fifteen minutes.

Post vaccination waiting area
After getting our vaccine, we waited again for fifteen minutes to make sure we were well enough to leave. Note the cleaner again (on the right)
Exit from the Vaccination Centre
Exit from the Vaccination Centre
Mare Street at King Edwards Road
Mare Street at King Edwards Road

Continue reading “Vaccinated!”

A walk in the past and the present

Wednesday, 27th January, 2021

Still strange to see 2021 written down but here it is. I’m finding it hard to think of things to write and staying local means there are fewer photos to spark my imagination. I’m taking them, though. Each one tells a story. So perhaps something newsy isn’t such a bad way to go. Somehow I know that other thoughts must blossom from this.

Today I’m feeling sad and thinking about loss. It’s Holocaust Day and I attended the online Memorial for Hackney. The stories were poignant – I’ve lit a candle. Yesterday I finished watching the series ‘It’s a Sin’ – a mini series about HIV/AIDS in the 80s in the UK. Lots of memories flooded my brain – of my brother in law declining and eventually dying of AIDS, of fleeting friends dying of it in Toronto – it felt like droves, of a friend who died of advanced breast cancer back in the early 1990s when they didn’t save as many women, and of my brother and I helping my dad through his days with pancreatic cancer. So, yes, sad.

Anyway, we are in another lockdown – is that three or four? No end date that I’ve heard of but possibly March, maybe April. Someone muttered ‘Easter.’ In short, who knows? It’s not quiet like last March but it’s quieter than last February so I’ll take what I can get. I order groceries for delivery, fill in with short jaunts to the very local and the somewhat local shops, and I stay in keeping myself busy or at least entertained.

With that in mind, my last exploration walk was a short one that I’d been putting off for some time. It’s a walk along the very short Spurstowe Terrace. I’d been thinking about walking along there for some time. It’s been ages since I did that. The crazy (or not so, really) thing was how different it looks from that last time.

My first question was who was Spurstowe? William Spurstowe lived from 1605–1666) and was a Calvinist clergyman, theologian, and member of the Westminster Assembly. He became vicar of Hackney in 1643. In 1662 the Uniformity Act was introduced and he was one of over 2,000 clergymen who refused to take the oath (the Great Ejection) so was ejected from his parish of Hackney for nonconformity. He remained in Hackney and built six almshouses there, work starting shortly before his death. Those almshouses are behind the Hackney Empire but he owned a great deal of ‘charity land’ in Hackney and I’m not sure if it would have included the space that Spurstowe Terrace occupies. More than likely it did, though, since some of his charity land was along Navarino Road. If you cross Graham Road, walking along Navarino Road, it intersects with Wilton Way and here you’ll find a very nice pub, the Spurstowe Arms. (I didn’t go that far.)

Hackney Downs Station
Hackney Downs Station on Dalston Lane at Amhurst Road
Tesco Express
To the right of the station is our Tesco Express. If we wanted we could do all our shopping here

Spurstowe Terrace

Spurstowe Terrace off Dalston Lane

Spurstowe Terrace
From Dalston Lane this is the (short) length of Spurstowe Terrace. You can see how much is new
A bit of the old peeking through
Much of Spurstowe Terrace is now modern or mid-century. However, behind the constructions and gates and hoarding, I got a peek of this older building. It seems to be an old factory or workshop
Back of Dalston Lane
I was quite fascinated by the smaller back gardens of these houses on Dalston Lane from Spurstowe Terrace.
Dole Office
I found this photo while researching. Doesn’t it look like the Dole Office was right against these houses on Dalston Lane? Those posts and gate have gone, if so
A glimpse of Navarino Mansions
From Spurstowe terrace, a parking area gave me a good view of Navarino Mansions
Modern living on Spurstowe Terrace
Modern living on Spurstowe Terrace

At the end of Spurstowe Terrace

At the end of Spurstowe Terrace were these housing authority houses – probably mid-century

Modern living
Modern living but not much of a view. You can just see Navarino Mansions. Wm Spurstowe had charity land on Navarino Road and perhaps here too

I did mention this street is no pretty sight! Would would William think?

Before Christmas they tore up the street in front of the house. It was very noisy and disruptive including the fact that the bus stops on either side of the ride were closed. This made going out shopping or making lighter of short exploration trips more difficult. Just before Christmas they filled everything in and we were back to normal. Not for too long, though. Not long after New Year’s Day back came the barricades and diggers. They closed off the area in front of the house, this time a larger area, and now the street facing down towards the house is also a construction site, no access for vehicles. This will go on until late February, but at least it’s been less noisy. I miss my bus stops!

Construction before Christmas
Construction before Christmas
Construction after Christmas
Construction after Christmas

So on the way home from a short Tesco shopping trip, I walked along most of the construction site  and made a video of what I see along my way (red line). Huge apologies and a warning here. I watched this myself and got very seasick. Wearing a mask, carrying a shopping bag, and with my glasses fogged up, I hadn’t accounted for the amount of rocking motion  that would be in the video. (And in the beginning, I clearly wasn’t capturing the whole whole view. Oops.) But there is a bonus – a quick side-trip to my closest corner store (so exciting). Anyway, grab your seasick pills or take it in stages!

Enough seasickness?

 

Sneaking out of the house – Christmas Lights 2020

Sunday, 27 December, 2020

Well, here it is, almost the end of the most unusual year ever – the same year I’d anticipated back in January, thinking that 2020 must be perfect after all (a reference to vision).

We are now in our third lockdown and this is the most serious, serious enough that they created a whole new label for it – Tier 4. This means ‘you must stay home’ but it seems like quite a few aren’t listening. This is no big surprise.

Last weekend I did a lovely virtual Christmas lights tour with Look up London and really enjoyed it. I did this tour because I thought I wouldn’t be able to do one in person. However, yesterday it was a dry day and I had the idea that maybe with lockdown in place and no Boxing Day sales, just maybe I might go down and see some lights for myself. So off we went.

The bus wasn’t busy and we felt pretty safe. It was the first time I’d been into the west end since last year at Somerset House. Along the way, I was trying to remember the way – what were we going to pass by and see on what would a year ago have been a familiar journey. What follows is a great many photos, I think, with some narrative.

There were very few on the bus
There were very few on the bus, with the traffic lights lending a Christmassy feeling

There was a very light rain so things were shiny and sparkly and, with not much traffic, and not many stops requested, we sped to Tottenham Court Road in a little over 20 minutes.

James Smith & Sons
James Smith & Sons umbrella shop marks the approach to Oxford Street
Tottenham Court Road
Tottenham Court Road is unrecognisable as construction continues on the Elizabeth line

My plan was to get off near Fortnum and Mason, back over to Piccadilly Circus, up Regent Street and into Soho, Chinatown and home again. It’s much less than I’d really like to do but it’s important to allow for the journey home and not need a rest or the toilet.

To get to Fortnum and Mason, you have to go through Piccadilly Circus, and Piccadilly Circus is just about the busiest intersection in London  – that and Oxford Circus. It was less quiet and busy than usual, but still bustling compared to elsewhere. They’ve put in extra walking space and there are more bicycles than I usually see but just as many buses in the same London-narrow space.

Fortnum and Mason is a very posh place. It’s been here since 1707, and it stands for luxury. Hugh Mason ran a small store  and met an entrepreneur called William Fortnum, whose family were high class builders reinvigorating Mayfair in the wake of the Great Fire. The partnership evolved. When I can get inside again, I’ll say more. For now, I’ll just say that it’s Christmas eye candy.

This extraordinary year F&M are featuring windows from their 313 years . And most splendidly, the front of their store has become a giant advent calendar. I find the whole thing magical.




Piccadilly Street itself has the same angels that it’s had each time I’ve visited. They’re looking over a grand street in an afluent, fashionable area called Mayfair that takes its name from the May fair held in Shepherd’s Market in the area (a fantasticvstreet for another day). Here are fashionable arcades and fancy boutiques and also the Royal Academy founded in 1768 by a group of 40 artists and architects who became the first Royal Academicians. I love its gates (now closed) and courtyard.

The Royal Academy Gates
The Royal Academy Gates
Angels over Piccadilly
Angels over Piccadilly
Entrance to Burlington Arcade
Entrance to Burlington Arcade

Behind Fortnum and Mason is Jermyn Street. This area dates from 1661 and often looks the part. Sir Isaac Newton, William Pitt, Sir Walter Scott, William Gladstone; and W. M. Thackeray have all lived here. The shops along here are exclusive – mostly it was quiet, even quieter than lockdown Piccadilly today.

Beau Brummell
At the entrance to Piccadilly Arcade is this statue of Beau Brummell, an iconic figure in Regency England and for many years the arbiter of men’s fashion. I asked Krish to pose the same way behind him

This video shows the Piccadilly Arcade entrance from Jermyn Street. Very elegant.

Corner window, Piccadilly Arcade
A touch of Europe – Corner window, Piccadilly Arcade
Piccadilly Arcade from Piccadilly
Piccadilly Arcade from Piccadilly
More angels, Jermyn Street style
More angels, Jermyn Street style
Shoe lasts
An impressive display of shoe lasts at Joseph Heane’s show store on Jermyn Street
Sir Isaac Newton lived here
Sir Isaac Newton lived here

Continue reading “Sneaking out of the house – Christmas Lights 2020”