Guys Hospital – psoriasis adventures

Wednesday, 14 April, 2021

It’s been quite a year for Krish. During his eye ‘adventures,’ which I now realise I haven’t really talked about much, he developed plaque psoriasis.

No one is quite sure what cases psoriasis. Stress is a trigger, but so too is steroid use (from his eye treatment) which also means his vitamin D level was compromised. Darker skinned people naturally have lower vitamin D because of their skin pigmentation. The darker your skin the more protection you have from the sun’s UV radiation, and that protection limits your ability to absorb VitD. Both stress and low VitD contribute to suppressing the immune system. Psoriasis is an immune-driven, hyperactive response.

It started with a small patch and within weeks, it covered his scalp his trunk and legs. Lots of home skin slatherings from several ointments and lotions later, he was referred to Guys Dermatology Centre for some serious treatment. At first he saw a consultant, and the 13th he started in the clinic. I decided to go with him for this appointment. We made plans to go for what looked like a 90-minute session and then do a bit of exploring.

It didn’t quite go that way! More foiled plans…

Guys is about 5 miles away
Guys is about five miles away. We can see the Shard from our window
On the train to Liverpool Street
On the train to Liverpool Street
Distancing at the barriers
Distancing at the barriers
A bit busier than last time at Liverpool Street Station
A bit busier than last time at Liverpool Street Station
More distancing at Liverpool Street Station
More distancing at Liverpool Street Station
There'll be a new Eataly here!
There’ll be a new Eataly here! Outside Liverpool Street Station

Maybe it’s the pandemic and lack of chaos, but I kept noticing things on Bishopsgate that I’ve not seen before. I must have been there hundreds of times, so how could I have overlooked so much?

Fire Brigade Station
Fire Brigade Station – above the Tesco store on Bishopsgate
Great Eastern Railway Hotel
Great Eastern Railway Hotel, now the Andaz

So much to see hear but the appointment time was getting closer, so we got the bus over to London Bridge Station, a stone’s throw from Guy’s Hospital.

Pandemic or not, I’m always excited to see the river. In my travels I’ve realised that I need to live in (or at the edge, at least) of a city but that city must be on a river, by the ocean, or a lake. A coastal city would be ideal for me were I able to afford to live there. Today, circumstances didn’t allow me to gaze at the Thames for too long, but I loved knowing I was there.

Instead, we headed straight for the Dermatology Clinic at Guy’s. First we had to head towards the new London Bridge station entrance, right at the Shard, and down an escalator to St Thomas Street and the beginning of Great Maze Pond – what a great street name!

Bike stand at the station
Bike stand at the station. No rival to Amsterdam bike racks, but this stand would normally be packed with bikes
Looking back at the bus station, London Bridge
Looking back at the London Bridge bus station, where our bus arrived
Ghost town at London Bridge station
It really was a ghost town at the usually all-day busy newly renovated London Bridge station. I need time to explore it all – this is just a small section
Pandemic travel rules
Pandemic travel rules
The Shard
Outside the station, looking up at the Shard – I can’t see the bottom or the very top
Down to St Thomas Street and straight ahead is Great Maze Pond
Down to St Thomas Street and straight ahead is Great Maze Pond
Great Maze Pond plaque
Great Maze Pond plaque

The plaque reads ‘The “Maze” Pond, which used to be situated at the southern end of the Guy’s site, was fed by a tributary of the River Thames, now known as ‘Guy’s Creek’. Archaeological excavation of the site has unearthed an early Romano-British boat and Roman timbers edging the creek.
In the Middle Ages farmers from Kent and Surrey used to drive their cattle up to London for sale at Smithfield Market. The fields around the Maze Pond were a focal point where the cattle were grazed and watered.
“Mr Guy’s Hospital for Incurables” was built on this site in 1725. John Rocque’s 1746 Map of London shows the pond still in existence. The local street-names then included “Maze Pond”, ” Little Maze Pond” and “The Maze pond”, which subsequently became Great Maze Pond – the name it still has today.’

The hospital itself has an interesting history as does the Dermatology Centre. The hospital was founded in 1721 by philanthropist Thomas Guy, who had made a fortune as a printer of Bibles and then speculated his money in the South Sea Bubble. At first the hospital was established to treat “incurables” discharged from St Thomas’ Hospital.

The  dermatology department  is the largest clinical dermatology department in the UK. John Milton founded St John’s Hospital for Diseases of the Skin in 1863. He was a surgeon who suffered from hand eczema so severe it ended his career. His personal experience with skin disease triggered his interest in dermatology.  St John’s Hospital for Diseases of the Skin moved to St Thomas’ Hospital in the mid-1980s. Soon after, it was formally renamed St John’s Institute of Dermatology.

At the Derm Centre
Standing on Great Maze Pond with the Shard straight ahead and the entrance to the hospital on my right
Immediate skyline from Guys - the Shard pointing to the sky
Immediate skyline from Guys – the Shard pointing to the sky

There’s not a lot of fuss at Guy’s Hospital compared to my visit to Barts. There are a few banks of hand cleaners and a table with a few people in attendance. No one checked if I had an appointment and no one offered me a new mask, asked me symptoms questions or took my temperature. This surprised me. We went through this casual ‘barrier’ and on to Bermondsey Wing where the Dermatology Centre is.

Again, there’s a simple table and a guard but she doesn’t ask us anything, so Krish checks in at the desk, and we sit down in the atrium waiting area and start looking for Krish’s name to appear on the board.

The quiet waiting area
The quiet waiting area at the Dermatology Clinic

Inside the atrium of the waiting area, and a view of the Shard summit
Inside the atrium from my seat, there’s a lovely view of the top of the Shard

And wait we did. Eventually a nurse came looking for him – his name had never appeared. Off he went, while I waited. After a bit the messages started to arrive

-I’m sitting waiting now
-Totally covered
-Sticky
-Head to toe
-Wrapped head

I thought about this for a minute then I said

-Take a selfie

It occurred to me that social media phobic Krish may not know how to take a selfie, but he did. I’ll spare his dignity and your eyes by not posting those photos here but his treatment will be head to toe emollient, one hour wait, applied pure coal tar (which he described and sounded like a hot wax treatment complete with popsicle sticks), one hour wait, then a shower, then steroid ointment before leaving. He’ll be going back for this three times a week for three weeks (minimum). So, if you get severe psoriasis, expect some or all of the same.

His appointment is five hours and the plan to walk about afterwards is vanishing. Walking painfully with a crutch means I really won’t attempt it alone, but I’m OK. Instead I go for a very short look outside and to try to find a snack. I didn’t find one out there but I did take a look for as long as my legs would carry me. And there’s a lot including a reference to a buried Roman boat under the Cancer Care Centre, and some fantastic ironwork opposite the main entrance. Otherwise, it’s a bland council estate area with nothing remarkable, at first glance anyway. Continue reading “Guys Hospital – psoriasis adventures”

COVID – Restlessness and Lethargy

Thursday, 8th April, 2021

I think about my blog every day. I think about writing for it every day. A day becomes a week becomes a month. I’m at once restless and lethargic, and how do I come to terms with that?

I’m not exactly sure.

My mother always told me, Janice, you think too much. She was right. What I think most about is other people. Who are they? What are they doing? Why don’t I know them? Where do they live? What do they eat? What are their lives when they are not in front of me, inside my head? Yes, all of that and more.

The short version of the story is I’m not getting out much and I’m not seeing that many people. Lockdowns combined with a deteriorating knee keep me indoors and away from things I normally love to do. I try to think about people who have written whole books while being (what I consider) prisoners of home and even bed. My hat’s off to them. Yes, the stories are still in my head but I lack the motivation. I’ve heard that inspiration is something being taken in, and motivation is about movement – a driving force.  Motivation is more closely connected to external stimuli, while inspiration is based on the internal stimuli. I’d say that right now I do feel inspired, but not really motivated. So if I’m not getting out that much, external stimuli are dampened, and the thoughts stay inside my head. So let’s get them out a bit.

I say I haven’t been out much, but I’m blessed by living in an area that is infinitely walkable (even now, and even though that might be limited) and infinitely fascinating. Those who feel at one with nature have a hard time understanding that. In nature I understand the peace and beauty, but as large as the vista might be, it’s harder for me to examine. Where are the people? Maybe I don’t want to face the person who is there – me. Hmm.

Right now ‘me’ is a person who can barely walk. My knee has given up and more than a few minutes on it becomes unbearably painful. Except I do bear it, and don’t want to. I’m doing my best. If I don’t try, then I’m missing out on so many things. Throughout the pandemic, I’ve managed what I could. Now my radius is shrinking and I’ll still do what I can. So let’s look at what I’ve managed to do and think positive and look ahead.

Not in order but a smattering of life chez moi at the moment.

Poetto
We are still mourning the loss of a favourite haunt, Poetto – a nice pizza and pasta with friendly service. Gone a few months before lockdown. Maybe it was a blessing for them.

Dragon guarding Upper Clapton Road
Krish noticed a dragon standing over a building – now building supplies but we’d love to know what it was before. I’ll keep researching!
Tram Depot
There was apparently a tram depot in Clapton and this is the yard. Nowadays it’s a collection of rental studios for film and photography called Hackney Studios. Notice the ghost sign, centre right.
Tram Store
After the tram depot, we visited Tram Shop. You can normally have a meal here, but right now it’s a general store. We found a few things to buy, none were food.
On the way to The Dusty Knuckle
I wanted to buy something at the Dusty Knuckle in Dalston. By the time I made it there (damn you, bad knee) the shelves were bare. Absolutely everything had sold out. This is the alley leading down to the bakery yard.

Stik in the Curve Garden
I hadn’t been in the Curve Garden for months! It was looking very green and wasn’t too busy. So Melodie and I sat by the Stik wallart and Melodie, who used to be his landlady, sent him texts, unanswered. I’m still a groupie, it seems.
Five King Edwards Road
When Krish had his vaccination, we made time to visit Fremont Street, home of my great grandmother and father, and where my maternal grandmother was born. Along the way we saw Five King Edwards Road, once a women’s fashion factory, now fancy flats.
Some elegant stonework.
We think this grand facade was likely the offices for the factory. Such elegant stonework.
Fremont Street

6 Fremont Street

6 Fremont Street. My maternal great grandparents lived here. It seems strange that I am now only 1km away from an ancestral home. Strange but fitting.
Nan and her mum
My maternal great grandmother, Phoebe, with my maternal grandmother, Charlotte (looking incredibly like my mum)

Tesco

Tesco Morning Lane. In just one year the world has changed. Shopping is a new experience and sometimes it feels like it was always like this, especially when I see people looking like they are used to it.

Knitting
I have always been a bad needleworker, but I enjoy creating things, watching them take shape. I made these ‘postwoman’s gloves’ from a simple pattern and decorated them. I’ve now made a third pair in light orange.
Stik at Homerton
I went for an XRay on my knee and made sure I stayed a while in front of the Stik mural in one of the courtyards. 
Daylight Savings Time
On 28 March the clocks went forward in the UK. The evenings are longer. The trees on Sandringham Avenue will soon be in leaf, and the skies will stay lighter.

Traffic
Low Traffic Neighbourhoods have taken cars away from some smaller streets and forced them to the larger streets, like mine. Every day starting around 3pm the parade of cars begins, ending almost four hours later.

Continue reading “COVID – Restlessness and Lethargy”

It all goes Pete Tong – Day 41

Sunday, 26 April, 2020

Forty-first day of sheltering in place.

I was doing well for a long time. I  was not feeling stir crazy, actually enjoying the pace of my days, like being on holiday and having the luxury of quiet afternoons to read, nap, write, or even make cookies. Then it all shattered. But first things first.

I made the vegan peanut butter chocolate chip cookies I learned to make at Cake or Death. I had enough for four nights of cookies. Each time I got a slightly different result. I think perhaps there was not enough flour or perhaps Krish mixed them too vigorously. But they were still delicious.


Peanut butter chocolate chip cookies
Vegan peanut butter chocolate chip cookies

There were the usual casual dinners. This was the fish finger tacos we eat quite often. Help yourself to all the toppings!

Fish finger tacos
Fish finger tacos

And old favourites like matzo ball soup. So comforting.

Matzo ball soup
Matzo ball soup – I love lots of carrots in it

I even had a go at chicken congee. It wasn’t too bad, considering I had the wrong rice and cooked it only ninety minutes. I’d like to try it again with short grain rice and cooking it for much longer.

Chicken congee
Chicken congee with extra ginger and green onions

It was interesting to watch people responding to social distancing. I had a lot of fun looking out of the window to see the spaced-out queues outside the Little Local, and people ‘meeting’ at safe distances in the houses opposite.

New style meetings
New style meetings

Continue reading “It all goes Pete Tong – Day 41”

Sheltering in Place – Day 10 – Truths

Wednesday, 25 March, 2020

So ‘everyone’ is in the same boat. It would be interesting to find out more about what people are doing differently than I am and learn from it. I’ve read some great Tweets, Instagram posts, articles, stories, and blogs but I’d like to look behind the public face and see the private realities.

I’m apparently ‘vulnerable’ due to age so I have stayed indoors since the afternoon of March 15th.

But my day is getting up, taking the pills that stop my stomach from quaking, standard two cups of tea and the usual breakfast, do some online work or don’t, exercise my knees, a short meditation, one or two hours of cleaning or tidying, prepare a simple meal, watch some TV or streaming, email or chat with friends near and far.

On my list – not yet written on the board propped by the lamp – brush up my French, improve my Italian, start a new doll that symbolises my dreams, attack my worrying backpile of taxes, clear out my clothing drawers, actually read the books I haven’t opened enough, start collecting important things so people (and I) can more easily find them – let me get back to you when I wrap my brain around getting that board written on. This seems a pathetic list, looking at it now. Where’s my great novel? Where’s the bodybuilding, the study of something amazing, the saving of humanity from my upstairs flat? Sigh.

Tell me the ideas will come.

But truth number one – I actually have enough to do. See above.

Truth number two – I don’t care all that much about my hair. I am a curly girl. My hair and how it curls (or doesn’t) consumes a lot of my time. Well, maybe not that much, but more than it does yours…I think. Sitting here, though, in my living room, not even on camera for any reason, I’m paying it no mind. It’s pinned up on my head out of my way, ignored, not for anyone’s eyes. And who cares what I wear? Not me…yet. There are more important things to do with my time.

Sitting outside
Once a day for 15-20 minutes I sit outside getting some ‘fresh’ air. Note my coordinated outfit.

Continue reading “Sheltering in Place – Day 10 – Truths”

More foiled plans and changes, changes, changes

Thursday, 20 February, 2020

We decided to go to Hackney Wick to see how things were progressing there. Hackney Wick is an artist’s community, with an overground station, near the Olympic Park at Stratford. It’s always been a mass of old buildings, factories, industrial parks, and warehouses and over time the artists and visitors have littered every wall, every door with art.

At one time, the art was glorious. Those days seem to be gone. A new entrance to the overground station has changed the orientation of the area and it confuses me. In the process of the change – where homes and factories have been torn down, the art has been sacrificed. As well, the old station entrance, which was always a bit of a dump, hasn’t been torn down yet. The day we arrived, we saw that several of the new buildings had been completed, the fancy office buildings, the luxury flats with names that were supposed to recall the area’s heritage – The Bagel Factory, Stonemasons Yard, Ceramic Works – they’re highly priced in this obviously deprived area. I wondered how many would just be owned rather than lived in. It made me that familiar mixture of curious, excited and sad to think about it and we cut our walk short since Krish was now motivated by the nearby Well Street Fish and Chips.






A rather ghostly and scribble-littered Hackney Wick
A rather ghostly and scribble-littered Hackney Wick – The new, the old, and the very quiet
A car crash in Hackney Wick near the estate. I didn't photograph the onlookers
A car crash in Hackney Wick near the estate. I didn’t photograph the onlookers. Notice more construction

A visit to the little Tesco and another to Lidl, then on to Vietnamese Supermarket.

We’d passed Lennox House on Cresset Road, approaching Well Street. The architectural notes read ‘These flats were built in 1936-7 to the designs of J E M MacGregor for Bethnal Green and East London Housing Association. There are 35 flats. The three bedroom flats were on the first floor, one bedroom flats on the top floor and two bedroom flats on the other levels. The original idea was that the central portion of the building beneath the stepped flats should be used as a covered market. The income from this would be used to subsidise the rents of the flats above. However, during the building period, land in the area was designated for residential use only. The Housing Association was also committed to providing a garden for each flat (apart from those on the ground floor).’ We noticed local brewery barrels on the main floor – did they brew in here, or just store the barrels? I think just store.

Lennox House, by Well Street, is a fantastic building
Lennox House, by Well Street, is a fantastic building
These balconies seem well-suited to creating the towering gardens we saw in Turin and Milan
These balconies seem well-suited to creating the towering gardens we saw in Turin and Milan
The original plaque
The original plaque
Barrels from the 40ft brewery
Barrels from the 40ft brewery- a Dalston success story
At the bottom of Cresset Road, Well Street is under construction
At the bottom of Cresset Road, Well Street is under construction – how long till this gentrifies completely?

And then, on the bus home, I discovered I didn’t have my bus pass. I looked through my entire bag and checked all my pockets. It was gone. The pass office told me that it would cost £12 to replace it but that my renewal was due to be sent out. I decided to wait and pay full price until it arrived.

I was going alone to see A Passage to India at the Tower Theatre that night so I left early and visited Lidl and the Vietnamese supermarket first – no pass had been found. I phoned the Tesco and the fish and chip shop – no pass. I was scuttled.

The play was very good. I’d seen the Masterpiece Theatre series years ago. My memory of it was nothing like the play I saw.  I enjoyed the fact actual Indian actors were playing those roles. I felt that British imperialism was probably fairly represented too. The xenophobia, the bigotry, the superior attitude, the refusal to accept something different by considering it unclean, barbaric. un-Christian so heathen…and the fear. Each side underestimated the other really. And at the end the anger was real.

A Passage to India
A Passage to India

Next, how my plans continue to be foiled! Continue reading “More foiled plans and changes, changes, changes”